Face to face / Online Counselling Yorkshire

We are really fortunate to be able to welcome Sally Oldfield to our associated team. She will be working with our young, bereaved siblings and friends in Yorkshire.

Sally wrote; –

When I was approached by the Jon Shaw Foundation, I felt privileged and honoured to have been considered to help such an amazing cause.
I work with various clients enhancing their emotional wellbeing in order to transform their many challenges both personal and professional; I work with clients one-on-one either face to face or online, assisting them to overcome: Stress, Trauma, Bereavement, Anxiety, Addiction, Eating
Disorders (to name a few).
Having gone through my own life-changing situations, I have extensive knowledge in some of these areas. I am passionate about providing a safe and non-judgemental environment for my clients and
firmly believe the relationship between the client and me is of upmost importance. My passion also extends to working with children and young adults and has proved to be an area I am particularly effective with. I too believe accessing therapy from a young age can be life changing!!!
Amazing cause…. Amazing people!! Hopefully together we can make a difference.

1-1 / Group Counselling Cheshire

We can now offer 1-1 or group counselling with Chelsea Garnett, a qualified, Person-Centred counsellor who has agreed to become part of our support team for bereaved siblings and friends.

Chelsea wrote;-

I have a wealth of experience in working with children and young people from all walks of life, providing 1-1 counselling, creative therapies, educational workshops and support groups. I liaise with schools, agencies and other support services, which support children and young people in the community. I have experience in working with: Abuse, Depression, Anxiety, Bereavement, Eating Disorders, Loss, Divorce, Self Harm, Isolation, Relationships, Suicidal thoughts, Abuse, Illness, Anger and other Social, Emotional and Mental Health issues.  Within my Practice I see clients who have self referred, referred from recommendations or who have being signposted by school/professional/Charity. I am a registered member of the British Association of Counselling and Psychotherapy (BACP) and I am bound by their framework for ethics and good practise. I am passionate about counselling and in particular counselling for young people. A chance to access counselling at a young age can be life changing and open the possibility for seeking further help later in life if the need arises. I am honoured to join the Jon Shaw Foundation and look forward to our journey ahead.

Working  in Partnership with the Manufacturers of  NightWatch.  

The device consists of a comfortable armband that closely monitors the wearer’s heart rate and motion during sleep. When the system suspects a possible major epileptic seizure, a warning is transmitted to a caregiver via a wireless signal to the armband’s corresponding base station. Visit their website for more information about the monitor, then contact Jon Shaw Foundation to discuss funding

If you would like to apply for a NightWatch monitor, we will pass your contact details to the company for a triage call to ensure this is the correct equipment for you.

Epilepsy Alarms UK is a trusted supplier of …

… epilepsy monitoring devices in the UK and we are proud to have partnered with them. They provide a vast range of devices tailored to all kinds of needs, with products from reputable brands such as Empatica, NightWatch, Emfit, BrioCare, and many more. Click on the link to see what devices are available  and then get in touch with the Jon Shaw Foundation to discuss funding of your new equipment.

Working  in partnership with MedicAlert

As a charity for 57 years, MedicAlert has provided lifesaving MEDICAL IDs, which are worn on pulse points. The ID will ensure that in an emergency, anyone helping the wearer will know they have epilepsy, therefore allowing the right support to be given immediately. Knowing this provides peace of mind to the person and their family, improving their confidence to be more physically active and join in socially. Both of which could contribute to better health and self esteem.
● MedicAlert is the only charity in the UK that provides a full medical ID service.
● Members’ comprehensive medical records are available in emergency situations,with the most important information engraved on their custom-made medical ID jewellery.
● Records may include conditions, allergies, advanced directives and other relevant documentation.
● All MedicAlert member records are checked by medical professionals, both when they are set up and when anything changes to ensure they are accurate and prioritised for use in emergency situations.
● The 24/7 emergency line can be accessed from anywhere in the world and includes translation into 100 languages.
● We aim to support those with medical conditions to remain active and independent, and to provide peace of mind to both our members and their families.
MedicAlert membership provides you, or a loved one, peace of mind each and every day, no matter where you might be.

Use the unique Jon Shaw Foundation code JONSHAW42 at their checkout to get your 1st year’s membership free and £10 discount off the I.D. 

Working Hard to Promote Awareness of SUDEP (Sudden Unexpected Death in Epilepsy)

Our charity is determined to promote awareness of the risks associated with epilepsy, including the risk of SUDEP.

We are not experts but we can signpost users to organisations which are. We regularly  research and follow the latest papers and discussions about SUDEP and share what we find through our social media links.

The Founder, is working hard together with local Health Authorities to make changes to what is discussed with patients, sharing her experience of her traumatic loss is having an impact on leaders within the Authority. She is also working in partnership with the Specialist Nursing Team within the Neurology department at Royal Stoke University Hospital, to offer patients funding for equipments where appropriate and offering talks to local support groups.

We have shared our story in local press and radio, and national womens magazine in an effort to reach the wider public and encourage them to ask questions of their clinicians.

We have also produced a leaflet giving in consultation with a Neurologist at a local University Hospital outlining information about SUDEP.

Below are some images of our work to promote awareness of SUDEP

The link for the PODCAST will open in another window