We Help to Improve the Mental Health of Bereaved Siblings and Close Friends
We offer funding to support bereaved siblings and close friends. We are forming partnerships with a number of organisations but the trustees are happy to discuss your particular needs and preferences. We can offer financial support for activities which will improve the mental health of young people (0-25 years) including anything from counselling, art therapy forest schools to membership of local sports clubs. The type of support offered is entirely driven by the interests and wishes of the young person and their family. Two of our trustees, Hannah and Matt are busy setting up a facebook page so that bereaved siblings and friends can share stories, support one another, and organise social events. They are also busy organising bi-monthly social groups which will include trying new activities through the day, (funded by JSF), and for those who want to, an evening meal and drinks while debriefing the day.
If you are a club or organisation which offers activities that may be of interest to our young people please get in touch.
If you know of a bereaved sibling or bereaved friend who would benefit from our support, please get in touch.
Complete the contact form below and email it to email@example.com
Forest Schools/Bushcraft Days
JSF has been working with Anthony Hadfield of “Head Into The Wild” a provider of Forest School and Bushcraft activity days. Groups will enjoy building shelters using tents, tarpaulines, leaves, branches and finallay erecting a hammock inside to test it out. Learning to tie knots and all about cordage, lighting fires and wild cooking, learning to use axes, knives and other tools safely. They will learning how to identify trees plants and minibeasts. They will even try their hand at archery.
We have arranged funding for Bereaved Siblings and friends to join in these fun sessions and enjoy the outdoors while taking some quiet time away from the grief at home. Watch out for dates on our home page and our facebook page.
Complete the application form below
1-1 / Group Counselling
We can now offer 1-1 or group counselling with Chelsea Garnett, a qualified, person Centred counsellor who has agreed to become part of our support team for bereaved siblings and friends.
I have a wealth of experience in working with children and young people from all walks of life, providing 1-1 counselling, creative therapies, educational workshops and support groups. I liaise with schools, agencies and other support services, which support children and young people in the community. I have experience in working with: Abuse, Depression, Anxiety, Bereavement, Eating Disorders, Loss, Divorce, Self Harm, Isolation, Relationships, Suicidal thoughts, Abuse, Illness, Anger and other Social, Emotional and Mental Health issues. Within my Practice I see clients who have self referred, referred from recommendations or who have being signposted by school/professional/Charity. I am a registered member of the British Association of Counselling and Psychotherapy (BACP) and I am bound by their framework for ethics and good practise. I am passionate about counselling and in particular counselling for young people. A chance to access counselling at a young age can be life changing and open the possibility for seeking further help later in life if the need arises. I am honoured to join the Jon Shaw Foundation and look forward to our journey ahead.
Memory Teddies for Bereaved Siblings & Friends.
We Help with Funding For Equipment
We support young people (under 25 years) to access monitors, alarms and other equipment which would not normally be available on the NHS.
We cannot recommend any particular equipment; details of the different types available can be found on Epilepsy.org
We are happy to discuss individual requirements and consider providing at least partial funding towards eqiupment which is most suitable for the young person’s needs. Examples of items we will consider;
Alarms and Monitors, e.g. Nightwatch, Embrace, Pulseguard, and Epicare standard and mobile.
Bed Monitors e.g. Companion, Guardian, Sensor Mat, etc.
Safety Pillows (anti suffocation pillows)
We have been working closley with LivAssured who supply NightWatch epilepsy monitors. Thanks to the many fundraising events we have managed to purchase a number of monitors to provide support young people living with epilepsy.
Sorry but we cannot provide donations to other charities, Funeral services, Home adaptations, Holidays etc.
Working in Partnership with the Manufacturers of NightWatch.
The device consists of a comfortable armband that closely monitors the wearer’s heart rate and motion during sleep. When the system suspects a possible major epileptic seizure, a warning is transmitted to a caregiver via a wireless signal to the armband’s corresponding base station. Visit their website for more information about the monitor, then contact Jon Shaw Foundation to discuss funding
If you would like to apply for a NightWatch monitor, we will pass your contact details to the company for a triage call to ensure this is the correct equipment for you.
Working in Partnership to Provide Better Care to More Young People.
We are always looking to improve our support to young people and their families, and to do this we work hard to develop partnerships with suppliers of equipment in UK and Europe
We work closely with Sleep Safe, a family company run by healthcare professionals focused on Healthcare Integrity. Anyone ordering through our website using the link will receive 22% discount on your order
Epilepsy Alarms UK is a trusted supplier of …
… epilepsy monitoring devices in the UK and we are proud to have partnered with them. They provide a vast range of devices tailored to all kinds of needs, with products from reputable brands such as Empatica, NightWatch, Emfit, BrioCare, and many more. Click on the link to see what devices are available and then get in touch with the Jon Shaw Foundation to discuss funding of your new equipment.
Working in partnership with MedicAlert
As a charity for 57 years, MedicAlert has provided lifesaving MEDICAL IDs, which are worn on pulse points. The ID will ensure that in an emergency, anyone helping the wearer will know they have epilepsy, therefore allowing the right support to be given immediately. Knowing this provides peace of mind to the person and their family, improving their confidence to be more physically active and join in socially. Both of which could contribute to better health and self esteem.
● MedicAlert is the only charity in the UK that provides a full medical ID service.
● Members’ comprehensive medical records are available in emergency situations,with the most important information engraved on their custom-made medical ID jewellery.
● Records may include conditions, allergies, advanced directives and other relevant documentation.
● All MedicAlert member records are checked by medical professionals, both when they are set up and when anything changes to ensure they are accurate and prioritised for use in emergency situations.
● The 24/7 emergency line can be accessed from anywhere in the world and includes translation into 100 languages.
● We aim to support those with medical conditions to remain active and independent, and to provide peace of mind to both our members and their families.
MedicAlert membership provides you, or a loved one, peace of mind each and every day, no matter where you might be.
Use the unique Jon Shaw Foundation code JSHAW152021 at their checkout to get 15% off when joining.
Working Hard to Promote Awareness of SUDEP (Sudden Unexpected Death in Epilepsy)
Our charity is determined to promote awareness of the risks associated with epilepsy, including the risk of SUDEP.
We are not experts but we can signpost users to organisations which are. We regularly research and follow the latest papers and discussions about SUDEP and share what we find through our social media links.
The Founder, is working hard together with local Health Authorities to make changes to what is discussed with patients, sharing her experience of her traumatic loss is having an impact on leaders within the Authority. She is also working in partnership with the Specialist Nursing Team within the Neurology department at Royal Stoke University Hospital, to offer patients funding for equipments where appropriate and offering talks to local support groups.
We have shared our story in local press and radio, and national womens magazine in an effort to reach the wider public and encourage them to ask questions of their clinicians.
We have also produced a leaflet giving in consultation with a Neurologist at a local University Hospital outlining information about SUDEP.
Below are some images of our work to promote awareness of SUDEP