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Latest News

Jump for Jon 18 April 2022

Nine of our top supporters volunteered to throw themselves out of an aeroplane on 18 April this year. A cloudy, chilly but dry day greeted us all in Cockerham, there were a few nervous people wondering why on earth they had said yes but nobody changed their minds. They went up after their safety briefing, really looking the part and after some time of neck breaking plane spotting by us observers we saw the tiny dots, our guys at 15000ft. Everyone landed safely and all had a huge smile and sense of achievent, all glad they had done it. Some are keen to repeat the experience so we’ll do it again next year. I have to say a massive thank you to Grant, Maddie, Chelsea, Matt, Lauren, Steve, Hannah, Haydon and Chloe. Between them they raised nearly £7000, which meant that Jon Shaw Foundation was given £4752.50 to spend on equipment for young people living with epilepsy and activities and therapies to support bereaved siblings and friends. 

Jump for Jon

Grand Summer Ball

This event has been cancelled, many apologies, see you at Christmas

Grand Summer Ball

TEAM FOR Great North Run 2022

We have joined the Great North Run for next years event. We have been allocated 10 places which I believe have been filled. There will be a Just Giving Page for the team and further details will be published as we have them. If you are interested please get in touch via email 


Great North Run (GNR)

  Our story in a National Magazine

We were lucky enough to have had Jons story published in Woman and Home magazine in February 2022. It was a lovely two page feature about his journey with epilepsy and what happened the morning he died. Hopefully it will encourage questions and promote awareness of the real risk of death in epilepsy