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Latest News

Charity Fun Run for Jon Shaw Foundation 28/08/21

Cheshire East have given us the go ahead for a Charity Fun Run on 28 August 2021.

It is our first event of this kind but it would be great for it to become an annual event.

We are getting lots of interest and hopefully well have lots of families supporting. There will be a bbq , ice-cream van, tombola and drinks available from the bar at The White Lion. (These items will be charged seperately).

Entries can only be guaranteed once the entry form and fees have been received. 


Total Warrior 10 July 2021

Were travelling to Leeds to support four of our Trustees, Matt Shaw , Lauren Wilby, Lorraine Wilby and Stephen Smales and friends. They are taking part in the Total Warrior event, 12K and 25 Obstacles, and hopefully raise some money and awareness for Jon Shaw Foundation and Life Prolonging Treatment  – Chemosaturation. Should be fun … for us spectators. Promise lots of photos.

  Donating Equipment


We travelled across to Yorkshire on 31 March 2021 to donate two monitors to families living with epilepsy.  We were happy to provide the support Elsie, Isla and their families were hoping for. 

Going Purple for Jon

The final few days of March saw Jons 21st birthday and International Epilepsy Day. We had some fantastic support from local primary schools, businesses, residents friends ad family.

The final total raised from our purple celebrations to mark Jon’s 21st birthday (Jon Shaw Foundation Awareness Day) and International Epilepsy Day was £3334.19.
We want to achieve so much and because of the support we have recieved we can carry on doing what we need to do.