07724393057 jsf22300@gmail.com


A few pictures in memory of Jon and of our fundraising activities…

Jump For Jon – Skydiving event 18 April 2022

Black Tie and Sparkle Charity Christmas Ball. 2021

Christmas Fair on a Stormy, Freezing Winters day. The White Lion Warmingham Road Crewe

Our First ever JSF 10k / 5k Fun Run, 28 August 2021 Sponsored by The White Lion Warmingham Road Crewe

Lejog 1010 mile Charity Cycle Challenge 9 August – 18 August 2021 Raised over £5000

Total Warrior Challenge Bramhall Park Wetherby Yorkshire 10 July 2021. Matt, Josh Vic, Pom, Lorraine Stephen, Lauren plus friend. All completed the course in two groups. Well done all.

Our first Fun in the Forest Activity day for Bereaved Siblings

Gorgeous weather, lots of fun and new skills learned. What could be better. The boys had a great time and even invited their family to have a go at archery. Looking forward to the next day on 03 July 2021

Celebrating Jon’s 21st birthday and International Epilepsy day.

Local schools, businesses, residents family and friends came together to remember Jon and raise funds for our Foundation. The support was overwhelming and it was lovely to talk to everyone about Jon and what we’re doing in his memory. 

Sarah Louis runs a marathon for Jon and SUDEP


Sarah Louise was due to run the London Marathon but it was cancelled because of the Covid pandemic. So she decided to run a marathon in her local areato raise money and promote awareness of Jon Shaw Foundation and of SUDEP. She lost her cousin some years before to SUDEP so understood how it could affect the whole family.

Thank you to Sarah Louise on behalf of all the young people who will benefit from her efforts. She was supported, on the day by friends from her running club who joined her for part of the route.

80s Memorial Disco

80s Disco on 14 March 2020, brilliantly organised by April Lysons and team. Fab music, great costumes and lovely food. Everyone had fun and we raised lots of money too. 

Jon a life in photos


Jon loved his family and was very close to his brothers. He enjoyed playing rugby and was quite good at throwing in athletics  field events. He really loved spending time with his brothers, going out with friends and generally living life to the full.

He was diagnosed with epilepsy at age 16 but he was determined not to let it stop him doing the things he wanted.

He had planned to travel after he had completed his apprenticeship and spoke a lot of visiting Australia and New Zealand.