A few pictures in memory of Jon and of our fundraising activities…
Sarah Louis runs a marathon for Jon and SUDEP
Sarah Louise was due to run the London Marathon but it was cancelled because of the Covid pandemic. So she decided to run a marathon in her local areato raise money and promote awareness of Jon Shaw Foundation and of SUDEP. She lost her cousin some years before to SUDEP so understood how it could affect the whole family.
Thank you to Sarah Louise on behalf of all the young people who will benefit from her efforts. She was supported, on the day by friends from her running club who joined her for part of the route.
80s Memorial Disco
80s Disco on 14 March 2020, brilliantly organised by April Lysons and team. Fab music, great costumes and lovely food. Everyone had fun and we raised lots of money too.
Jon a life in photos
Jon loved his family and was very close to his brothers. He enjoyed playing rugby and was quite good at throwing in athletics field events. He really loved spending time with his brothers, going out with friends and generally living life to the full.
He was diagnosed with epilepsy at age 16 but he was determined not to let it stop him doing the things he wanted.
He had planned to travel after he had completed his apprenticeship and spoke a lot of visiting Australia and New Zealand.