Our Trustees

Meet the people making everything happen…  

Wendy Shaw

Founder & Chair of Risk Management Committee

I set up the charity which was registered on 15 April 2020 to pay tribute to Jon’s memory. I am a  proud mum of three boys, Mike Matt and of course Jon who will always be in the heart of our family.

I wanted to help young people living with epilepsy stay safe and be confident that help would get to them when they needed it. It was also important to me that siblings and friends had their grief acknowledged and that we could offer funding for help they needed to improve their mental health. Of course it was a priority to ensure I could make as many people as possible aware of the risk of SUDEP. As a family living with epilepsy we didn’t know it existed, just like 85% of bereaved families. 

My background is HM Forces (WRAF) and Family Support, where I  spent 17 years supporting families with children of primary school age before retiring in 2019.


Naomi O’Brien

Treasurer and Chair of Finance Committee

Long time family friend. Mum of Jon’s oldest friend.


Matt Shaw

Risk Management /bereaved siblings coordinator

Matt, Jon’s brother and all around fun guy. Having personal experience of tragic loss he is keen to support bereaved siblings in their journey through their grieving.

Background, Reaseheath College and Engineering Apprentice.


Nikki Lawton

Safeguarding / Finance Committee

Having worked with Wendy for numerous years in a professional capacity in more recent years she has become a friend.
The awful news about Jon took all of us by surprise. I am looking to support Wendy in her drive to bring about more positive outcomes for other families in Jon’s name.

Chris Maloney

Risk Management Committee

Fundraising Coordinator

A close friend to Jon and his family, as a Trustee I am striving to promote the key initiatives set out by the Foundation. I will work hard to help the charity flourish beyond the outstanding project it already is.

Lauren Sorby
Risk Management Committee
Safeguarding Trustee
I am  Jon’s cousin, live with my partner James and mum to Adrian. My background is supporting primary school aged children with special educational needs and I am currently studying for a degree in Primary Education through Open University. I wanted to become a trustee to help Jon Shaw Foundation support families and I am determined to help try to prevent other families suffering traumatic loss due to SUDEP. I am looking forward to helping raise funds and awarenes starting with the  Total Warrior event, I am taking part along with Matthew and a team of friends.

Trustee Responsible for devoloping GDPR

I had returned from living abroad when I heard that Steve, an old friend since infant school, Wendy, Matt and Mike had lost Jon in such tragic circumstances. When I heard that Wendy was founding a charity in Jon’s name, the sense of uselessness I’d felt at the funeral fell away and I determined to support her and the founding trustees achieve their goals because;

Through wider awareness among, and more systematic communication between clinicians, those at risk and their families, SUDEP is eminently preventable.
Technology is available to further reduce the risk of SUDEP and the 24/7 worry that those at risk and their families have to live with.
When a young person is tragically taken from them, in no matter what circumstances, let’s not let their siblings and young friends struggle alone to deal with their loss.
After a couple of years of my just donating and fundraising, Wendy invited me to become a trustee so I’m very honoured and happy to also do my best in that role as well

Lorraine Wilby

Fundraising coordinator / Finance Committee

I am truly honoured  to be a trustee for the Jon Shaw Foundation. I want to help raise funds & awareness so that it can continue to grow. I want to support families and help try to prevent other families suffering  loss due to SUDEP.

My partner is Stephen, I’m a mum to lauren and mama’s to Adrian. Since the cancer diagnosis, I  retired to enjoy enjoying as much time with family as possible.

I love being involved with the local community, organising events & raising money. I’ll be completing london Marathon in October for Epilepsy Society, and am honoured to be wearing a photo of Jon on my vest. My aim is to help promote the charity and help raise vital funds via our existing fitness community, social media and face to face networking.

Laura Carter

Equality, Diversity and inclusion. (Including volunteer wellfare)

I feel this is an important aspect to those we help, their families and everyone involved in the charity.

I live with my fiancé Nathan and three children, Jacob, Lexi and Tommy. I am currently in my last year at The Open University, studying towards a degree in psychology and work part time as a 1-1 SEN Teaching Assistant. I love to help children and young people, professionally being in a supporting primary school role. I am passionate about inclusion for all children, young people and others.

My sister in law is a cousin of Jon and I’ve supported Jon Shaw Foundation from its early days, doing all that I could. Now I feel it’s time to join the board of trustees, to continue making a difference to children and young people

I intend to raise awareness of SUDEP and support siblings and friends through their difficult time after bereavement.

I am honoured to bea part of Jon Shaw Foundation.

Hannah Faye Holt

Foundation Secretary/ Bereaved siblings coordinator.

I am absolutely delighted to join  Jon Shaw Foundation as Secretary Trustee. I know Jon through being friends with Matt during and beyond college, I have felt that it is vitally important to raise awareness of SUDEP and I feel so honoured to be joining the Trustees. As someone who has experience unexpected loss multiple times, I’m really keen to help in the aim of supporting bereaved siblings and close friends.

I have a varied background in account and event management through my career roles and an extensive history of fundraising previously.