young people living with epilepsy


the mental health of bereaved siblings and close friends


awareness of SUDEP (Sudden Unexpected Death in EPilepsy)

We are looking for volunteers to help with our fundraising events and social activities for bereaved siblings and friends.

If anyone has a minibus and willing to drive us or loan it to us occasionally that would be great.

Join us for our 3rd Annual Charity Christmas Ball

We will be at Crewe Hall for our Black Tie and Sparkle Charity Ball on 2 December 23. Starting at 6 with reception drinks and welcome entertainment from our guest lounge singer.

Followed by  a 3 course meal and grand draw before dancing the night away until 1am.

Have a laugh and take a souvenir photo of the night in our photo booth.

Tickets are £50 per head, reserve your seat with £10 deposit or take advantage of our early bird offer. Book and pay before 30 June and get 10% discount

Contact us below to reserve tickets, we will then send payment details.




Read our latest news and events here

Jon’s charity aims to help young people with epilepsy live safely and independently, and to make life a little easier for bereaved siblings and close friends. We rely on Fundraising events and donations to fund our support projects, if you would like to help us to help young people click the donate button below. 100% of the money we receive will be used to achieve our aims. More ways to help us out are on the “donate” page

Thank you on behalf of all the trustees.

People Reached

£ Raised


Equipment donated - % of target achieved 2022

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Please don’t hesitate to get in touch. We will aim to respond within 24 hours.