young people with epilepsy.
the mental health of bereaved siblings.
the awareness of SUDEP.
Every Penny Counts...
Jon’s charity aims to help young people with epilepsy live safely and independently, and to make life a little easier for bereaved siblings. We rely on Fundraising events and donations to fund our support projects, if you would like to help us to help young people click the donate button below. 100% of the money we receive will be used to achieve our aims. Thank you on behalf of all the trustees.
Find out more about our current fundraising events and activities.
Black Tie & Sparkle Evening – 27 March 2021
Join us for our inaugural charity event; “Black Tie and Sparkle” at Crewe Hall on 27 March 2021, 6pm until Midnight. Included in the price of your ticket are reception drinks, three course dinner, dancing and charity auction. Tickets are just £40.00 each, with 10% discount when reserving a full table of 10. (1 free ticket per 10 purchased)
Visit our Facebook page for event details.
Tickets are available from firstname.lastname@example.org or through our Facebook page.
WE RAISE AWARENESS.
WHAT WE DO
We are a group of friends and family of Jon, who are determined to help young people with epilepsy and others who have lost siblings in honour of Jon’s memory. We know only too well that few people have heard of SUDEP and it is part of our mission to inform everyone of the risks in epilepsy. We also know from personal experience how difficult it is to lose a sibling.
During the first few months of Jon’ s death there was a lot of support for me as a mum but his brothers were generally overlooked. Speaking to other bereaved families I have discovered that this seems to be a recurring theme, so it is important for us to change this if we can.
We will offer financial assistance for equipment and services not normally available through the NHS. For example Monitors and alarms, anti suffocation pillows and many more. Provide funding towards leisure or sporting activities/clubs, and signpost and coordinate access to play/animal therapy, forest schools. We will also organise social events so that bereaved siblings will have the opportunity to talk to others who will understand. Continue to raise awareness of SUDEP by setting up information points in local businesses, in addition to sharing information with organisations working with young people. We will continue to promote awareness at all our fundraising events.
Obviously this all comes at cost but we will do all we can to help those who need us and bring the changes needed to make everyone aware of the risks through fundraising events and donations.
GET IN TOUCH.