07724393057 jsf22300@gmail.com


young people living with epilepsy


the mental health of bereaved siblings and close friends



the awareness of SUDEP

(Sudden Unexpected Death in Epilepsy)


Our very latest Events Headlines

A Big Thank you to Jon Rouse & Co Ltd Sandbach.

Telephone 01270 487713

Email info@jonrouse.co.uk

The trustees would like to send a big thank you to Jon Rouse & Co Ltd. for independently verifying our annual accounts. This year our charity has done exceptionally well, so well in fact, that our income went through the threshold where we needed to have our annual accounts examined.  This would normally be a significant expense, but fortunately the generosity of a local family accountancy business offered to help us out free of charge. Fantastic support from a local business. Our annual report and accounts will now be submitted to the Charities Commission and will be available for public view shortly.


We are looking for volunteers to help with our Summer Fair and Family Fun in the Sun. We need hands to Marshall the Fun Run and Family sports events. Set up and take down the stalls for the fair. Run the BBQ and lots of other things Im sure Also check out the vacancy for a Trustee on Latest News. 

Fun in the Sun  White Lion Warmingham Road 27 August 2022

We are planning a day of Fun in the Sun on 27 August 2022, Bank Holiday Saturday. We will start the day with our second 10K/5K Fun Run for our energetic supporters. This will be followed by our first Summer Fair, we are hoping for craft, food and gift stalls these are to be confirmed. During the day we will organise a Family Sports Day just for fun, including a Tug of War for the mums and dads to join. There will be a BBQ, Ice Cream and of course refreshments from the outdoor bar (or indoors if you prefer)  There will be an entry fee for the Fun Run, and a charge of £10  if you want to have a table at the fair. 

Keep an eye on our social media for more details as they are confirmed. 

Team JSF enter Great North Run

On 11 September we have a team of 10 running the Great North Run (GNR) to raise funds for and awareness of Jon Shaw Foundation. 

We know that times are hard but if you would like to donate a small amount they have a Just Giving Page, if we all work together we can do a lot. Thank you


AGM 16 July 2022 at Village Hotel, Hyde.

We held our AGM on 16 July, it was the first opportunity for all Trustees from Cheshire and Yorkshire to sit around the table together, without the need for Zoom. We had lots of positive discussion about future plans and ideas about how develop our governance and support we offer our families.

Tough Mudder North West 10 Sep 22

We have a team of 12 suppporters taking part in this years Tough Mudder at Cholmondeley Castle Gardens. They are doing the 15K challenge with 30 obstacles to get through. They would like to raise £1500 for our Foundation, so if you can help please have a look at their just giving page. If you click on the Team name at the bottom, you can support any of the team, or donate to the team together on the page.


Jon’s charity aims to help young people with epilepsy live safely and independently, and to make life a little easier for bereaved siblings and close friends. We rely on Fundraising events and donations to fund our support projects, if you would like to help us to help young people click the donate button below. 100% of the money we receive will be used to achieve our aims.

Thank you on behalf of all the trustees.

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