After much consideration, we have made the decision to begin the process of dissolving the Jon Shaw Foundation.

This is not a decision we have taken lightly. Since the Foundation was established in Jon’s memory, it has been our privilege to support families living with epilepsy and to provide life-changing safety equipment to young people who desperately needed it.

What began from the unimaginable pain of losing Jon grew into something that has helped hundreds of families. Every piece of equipment provided, every family supported with bereavement, every conversation about epilepsy and SUDEP, and every person who has helped us along the way has made a difference.

We could never have achieved this without our incredible fundraisers, volunteers, sponsors, supporters, friends and family. To every single person who has walked, run, donated, sponsored, attended an event, shared a post, or simply believed in what we were trying to achieve — thank you.

Most importantly, thank you for helping us keep Jon’s name alive and turning our grief into something positive.

Although the Foundation is coming to an end, Jon’s legacy does not. We will continue to raise awareness of epilepsy and help others with their cause. We are planning to sponsor a support dog for epilepsy in memory of Jon and help the charity, Support Dogs UK, to build the facilities needed to provide the care and wellbeing of the dogs.

We will always remember the young man behind the name, the life he should have lived, and the difference that has been made in his memory.

With love and enormous gratitude,

The Jon Shaw Foundation ❤