young people living with epilepsy


the mental health of bereaved siblings and close friends


awareness of SUDEP (Sudden Unexpected Death in EPilepsy)

We are looking for volunteers to help with our fundraising events and social activities for bereaved siblings and friends.

If anyone has a minibus and willing to drive us or loan it to us occasionally that would be great.

Join us for our 3rd Annual Charity Christmas Ball


We will be at Crewe Hall for our Black Tie and Sparkle Charity Ball on 2 December 23. 

Let’s start the festive season in style, with your sequins and lace, formal evening wear and make it a night to remember.

The fun begins at 6pm when you’ll be entertained by a lounge singer during reception drinks. 

Then a 3 course meal followed by the Grand Christmas Draw and maybe a few other fund raising activities. Dance until the early hours to music from 70s, 80s, 90s, and up to date sounds for our younger guests.

We will have a photographer on hand to capture posed and candid shots for us all to treasure.

Tickets are £50 and every penny we make will be used to improve the lives of many more young people, bereaved or living with epilepsy. We have 50 seats left so plenty if you want to reserve a table (10) for your Office Christmas party.

Deposits of £10 required now, balance to be paid by 28 October 23.

SPONSORS: Businesses and families who can sponsor some our costs are vital to the success of this fundraising evening.

ITEMS FOR THE GRAND DRAW: If you have a special item, exciting experience or sporting memorabelia to donate to our draw, please let us know. 

Contact us below to reserve tickets, or to discuss sponsorship and prizes for the grand draw.




Read our latest news and events here

Jon’s charity aims to help young people with epilepsy live safely and independently, and to make life a little easier for bereaved siblings and close friends. We rely on Fundraising events and donations to fund our support projects, if you would like to help us to help young people click the donate button below. 100% of the money we receive will be used to achieve our aims. More ways to help us out are on the “donate” page

Thank you on behalf of all the trustees.

People Reached

£ Raised


Equipment donated - % of target achieved 2022

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